Henrietta Lacks’ family reaches settlement over use of her ‘stolen’ cells : NPR

A painting of Henrietta Lacks by Kadir Nelson is displayed at the HeLa Project exhibit in New York City in 2017. Lacks’ genetic material, taken without her knowledge in 1951, has helped facilitate numerous scientific breakthroughs. Her life was the subject of the popular nonfiction book The Immortal Life of Henrietta Lacks.

Nicholas Hunt/Getty Images for HBO

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Nicholas Hunt/Getty Images for HBO

A painting of Henrietta Lacks by Kadir Nelson is displayed at the HeLa Project exhibit in New York City in 2017. Lacks’ genetic material, taken without her knowledge in 1951, has helped facilitate numerous scientific breakthroughs. Her life was the subject of the popular nonfiction book The Immortal Life of Henrietta Lacks.

Nicholas Hunt/Getty Images for HBO

The family of Henrietta Lacks has reached a settlement with a science and technology company that it says used cells taken without Lacks’ consent in the 1950s to develop products it later sold for a profit.

Lacks was being treated for cervical cancer at Johns Hopkins University in 1951 when doctors removed cells from her tumor without her knowledge or permission.

Those cells — now known as HeLa cells — had remarkable properties that allowed them to be endlessly reproduced, and they have since been used for a variety of scientific breakthroughs, including research about the human genome and the development of the polio and COVID-19 vaccines.

Lacks’ descendants have argued that she and other Black women were “preyed on” by a group of white doctors in the 1950s and that her family was never compensated for the use of her genetic material, which made such profitable scientific advancements possible.

“Not only were the HeLa cells derived from Henrietta Lacks — the HeLa cells are Henrietta Lacks,” Ben Crump, an attorney for the family, said during a news conference Tuesday.

Thermo Fisher Scientific, a Massachusetts-based science and technology firm, previously asked a judge to dismiss the case, arguing in part that the plaintiff’s claims were too old.

In nearly identical statements, the company and attorneys for Lacks’ family said the “parties are pleased that they were able to find a way to resolve this matter outside of Court and will have no further comment” on the settlement.

The terms of the settlement agreement are confidential.

Attorneys for Thermo Fisher Scientific said in an earlier court filing that only a “handful” of the many products that the company sells are “HeLa-related.”

Lacks’ life was the subject of a popular nonfiction book, The Immortal Life of Henrietta Lacks, and later a film of the same name starring Oprah Winfrey.

On its website, Johns Hopkins University says that it never profited from Lacks’ cells and that, though the collection and use of her cells was “an acceptable and legal practice in the 1950s, such a practice would not happen today without the patient’s consent.”

Speaking at Tuesday’s news conference, Alfred Carter, one of Lacks’ grandsons, called it a “day that will go down in history.” He noted that Tuesday was Henrietta Lacks’ 103rd birthday.

“It couldn’t have been a more fitting day for her to have justice, for her family to have relief,” he said.